Browsing Duke Faculty Articles by Subject "parents"

Now showing items 1-3 of 3

Analysis of Educational Materials and Destruction/Opt-Out Initiatives for Storage and Use of Residual Newborn Screening Samples

Haga, Dr Susanne (MARY ANN LIEBERT INC, 2010)

In recent years, the storage and use of residual newborn screening (NBS) samples has gained attention. To inform ongoing policy discussions, this article provides an update of previous work on new policies, educational ...
Researcher Practices on Returning Genetic Research Results

Heaney, Christopher; Tindall, Genevieve; Lucas, Joe; Haga, Dr Susanne (MARY ANN LIEBERT INC, 2010)

Background/Aims: As genetic and genomic research proliferates, debate has ensued about returning results to participants. In addition to consideration of the benefits and harms to participants, researchers must also consider ...
Young Caregivers in the End-of-Life Setting: A Population-Based Profile of an Emerging Group

LeBlanc, Thomas William; Abernethy, Amy (MARY ANN LIEBERT INC, 2010)

Purpose: Little is known about young caregivers of people with advanced life-limiting illness. Better understanding of the needs and characteristics of these young caregivers can inform development of palliative care and ...