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dc.contributor.author Bull, J
dc.contributor.author Zafar, SY
dc.contributor.author Wheeler, JL
dc.contributor.author Harker, M
dc.contributor.author Gblokpor, A
dc.contributor.author Hanson, L
dc.contributor.author Hulihan, D
dc.contributor.author Nugent, R
dc.contributor.author Morris, J
dc.contributor.author Abernethy, AP
dc.coverage.spatial United States
dc.date.accessioned 2011-04-15T16:46:31Z
dc.date.issued 2010-08
dc.identifier http://www.ncbi.nlm.nih.gov/pubmed/20649439
dc.identifier.citation J Palliat Med, 2010, 13 (8), pp. 1013 - 1020
dc.identifier.uri http://hdl.handle.net/10161/3333
dc.description.abstract BACKGROUND: Outpatient palliative care, an evolving delivery model, seeks to improve continuity of care across settings and to increase access to services in hospice and palliative medicine (HPM). It can provide a critical bridge between inpatient palliative care and hospice, filling the gap in community-based supportive care for patients with advanced life-limiting illness. Low capacities for data collection and quantitative research in HPM have impeded assessment of the impact of outpatient palliative care. APPROACH: In North Carolina, a regional database for community-based palliative care has been created through a unique partnership between a HPM organization and academic medical center. This database flexibly uses information technology to collect patient data, entered at the point of care (e.g., home, inpatient hospice, assisted living facility, nursing home). HPM physicians and nurse practitioners collect data; data are transferred to an academic site that assists with analyses and data management. Reports to community-based sites, based on data they provide, create a better understanding of local care quality. CURRENT STATUS: The data system was developed and implemented over a 2-year period, starting with one community-based HPM site and expanding to four. Data collection methods were collaboratively created and refined. The database continues to grow. Analyses presented herein examine data from one site and encompass 2572 visits from 970 new patients, characterizing the population, symptom profiles, and change in symptoms after intervention. CONCLUSION: A collaborative regional approach to HPM data can support evaluation and improvement of palliative care quality at the local, aggregated, and statewide levels.
dc.format.extent 1013 - 1020
dc.language ENG
dc.language.iso en_US en_US
dc.relation.ispartof J Palliat Med
dc.relation.isversionof 10.1089/jpm.2010.0017
dc.subject Aged
dc.subject Ambulatory Care
dc.subject Continuity of Patient Care
dc.subject Cooperative Behavior
dc.subject Data Collection
dc.subject Databases, Factual
dc.subject Female
dc.subject Health Services Accessibility
dc.subject Health Services Research
dc.subject Hospice Care
dc.subject Humans
dc.subject Interinstitutional Relations
dc.subject Male
dc.subject North Carolina
dc.subject Palliative Care
dc.subject Program Development
dc.subject Program Evaluation
dc.subject Quality Improvement
dc.subject Regional Health Planning
dc.title Establishing a regional, multisite database for quality improvement and service planning in community-based palliative care and hospice.
dc.type Journal Article
dc.description.version Version of Record en_US
duke.date.pubdate 2010-8-0 en_US
duke.description.endpage 1020 en_US
duke.description.issue 8 en_US
duke.description.startpage 1013 en_US
duke.description.volume 13 en_US
dc.relation.journal Journal of palliative medicine en_US
pubs.author-url http://www.ncbi.nlm.nih.gov/pubmed/20649439
pubs.issue 8
pubs.organisational-group /Duke
pubs.organisational-group /Duke/Institutes and Provost's Academic Units
pubs.organisational-group /Duke/Institutes and Provost's Academic Units/University Institutes and Centers
pubs.organisational-group /Duke/Institutes and Provost's Academic Units/University Institutes and Centers/Global Health Institute
pubs.organisational-group /Duke/Sanford School of Public Policy
pubs.organisational-group /Duke/Sanford School of Public Policy/Sanford School of Public Policy - Secondary Group
pubs.organisational-group /Duke/School of Medicine
pubs.organisational-group /Duke/School of Medicine/Clinical Science Departments
pubs.organisational-group /Duke/School of Medicine/Clinical Science Departments/Medicine
pubs.organisational-group /Duke/School of Medicine/Clinical Science Departments/Medicine/Medicine, Medical Oncology
pubs.organisational-group /Duke/School of Medicine/Institutes and Centers
pubs.organisational-group /Duke/School of Medicine/Institutes and Centers/Duke Cancer Institute
pubs.organisational-group /Duke/School of Medicine/Institutes and Centers/Duke Clinical Research Institute
pubs.organisational-group /Duke/School of Nursing
pubs.organisational-group /Duke/School of Nursing/School of Nursing - Secondary Group
pubs.publication-status Published
pubs.volume 13
dc.identifier.eissn 1557-7740

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