Browsing by Author "Barton, Sarah Jean"
- Results Per Page
- Sort Options
Item Open Access Availability of post-hospital services supporting community reintegration for children with identified surgical need in Uganda.(BMC health services research, 2018-09-20) Smith, Emily R; van de Water, Brittney J; Martin, Anna; Barton, Sarah Jean; Seider, Jasmine; Fitzgibbon, Christopher; Bility, Mathama Malakha; Ekeji, Nelia; Vissoci, Joao Ricardo Nickenig; Haglund, Michael M; Bettger, Janet PrvuBACKGROUND:Community services and supports are essential for children transitioning home to recover from the hospital after surgery. This study assessed the availability and geographic capacity of rehabilitation, assistive devices, familial support, and school reintegration programs for school-aged children in Uganda with identified surgical need. METHODS:This study assessed the geographic epidemiology and spatial analysis of resource availability in communities in Uganda. Participants were children with identified surgical need using the Surgeons OverSeas Assessment of Surgical need (SOSAS). Community-based resources available to children and adolescents after surgery in Uganda were identified using publicly available data sources and searching for resources through consultation with in-country collaborators We sought resources available in all geographic regions for a variety of services. RESULTS:Of 1082 individuals surveyed aged 5 to 14 yearsr, 6.2% had identified surgical needs. Pediatric surgical conditions were most prevalent in the Northern and Central regions of Uganda. Of the 151 community-based services identified, availability was greatest in the Central region and least in the Northern region, regardless of type. Assuming 30% of children with surgical needs will need services, a maximum of 50.1% of these children would have access to the needed services in the extensive capacity estimates, while only 10.0% would have access in the minimal capacity estimates. The capacity varied dramatically by region with the Northern region having much lower capacity in all scenarios as compared to the Central, Eastern, or Western regions. CONCLUSIONS:Our study found that beyond the city of Kampala in the Central region, community-based services were severely lacking for school-aged children in Uganda. Increased pediatric surgical capacity to additional hospitals in Uganda will need to be met with increased availability and access to community-based services to support recovery and community re-integration.Item Open Access Becoming the Baptized Body: Disability, Baptism, and the Practice of Christian Community(2019) Barton, Sarah JeanThis dissertation takes up questions of how theologies and practices of baptism shape visions of what it means to be a disciple of Jesus and a participant in Christian ecclesial communities. In particular, the dissertation investigates how baptism as the paradigmatic initiatory practice of the Church might transform communities to cultivate radical belonging for people with intellectual and developmental disabilities.
In order to address these questions, the dissertation engages a variety of methods, including historical and thematic analysis of theological texts (particularly in the field of disability theology), theological engagement of New Testament texts and biblical scholarship on the Pauline epistles, as well as an analysis of qualitative research conducted by the dissertation’s author (in-depth, semi-structured interviews) among adults with intellectual and developmental disabilities, their families and key support persons, as well as clergy and lay leaders in Christian denominations across the ecumenical spectrum. An integrative analysis of theological texts, biblical texts, and narratives arising from the qualitative research analysis provides a foundation for constructive theological suggestions, in a practical and pastoral register, at the conclusion of the dissertation.
This dissertation concludes that a baptismal hermeneutic provides a critical lens to faithfully reflect on disability, as well as transformative practices to support the flourishing, belonging, and witness of people with intellectual and developmental disabilities in Christian faith communities. Baptismal theologies and practices suggest the centrality of communal, Jesus-centered, and participatory accounts of Christian identity in the Church – the community this dissertation names as the baptized Body. In particular, the dissertation commends practices of baptismal preparation, testimony, and reaffirmation as key avenues for participation of all people in ecclesial spaces (robustly inclusive of people with intellectual and developmental disabilities). These practices constitute transformative pathways to affirm the centrality of baptismal identity and baptismal vocation to discipleship for an ongoing, radical transformation of ecclesial life, empowered and sustained by the Holy Spirit. In addition, the baptismal hermeneutic and baptismal practices explored throughout the dissertation critically expand discourse on intellectual and developmental disabilities in the field of Christian theology.
Item Open Access Inclusion of the Autism Population in Churches, Schools and Communities(2021) Mapson, Charlrean BattenAbstract
There is a population of individuals classified as having Autism Spectrum Disorder (ASD). This group of people should be included in places of worship, the schools they attend and the communities where they reside. Consequently, they are sometimes excluded from some occurrences that others experience.
Utilizing personal stories (of successes and sometimes failures), ASD parent interviews and research, I will offer suggestions for inclusion and enlighten the areas where there tends to be exclusion. My focus is the church and how church leaders may become involved in the lives of ASD parishioners to enhance inclusion in not only the church, but the school and the community as well.
My research shows that ASD parents would like their children to experience church as they have. Although willing, most churches, may lack the ability to oblige for various reasons. Schools where inclusion is not encouraged, rests primarily on the shoulders of the principals. Like pastors in churches, principals in schools have influence and can spearhead inclusion efforts in their respective entities. Community entities are willing to accommodate ASD clientele and have done so when approached to comply.
I contend where any of these entities are not willing to foster inclusion, then the church can and most often should become involved to assist, with the necessary training. In other words, the church must do what the church has always done – stand up for those who are unable to do so for themselves.
Keywords: Autism, church, community, inclusion, parents, school
Item Open Access Inclusion of the Autism Population in Churches, Schools and Communities(2021) Mapson, Charlrean BattenAbstract
There is a population of individuals classified as having Autism Spectrum Disorder (ASD). This group of people should be included in places of worship, the schools they attend and the communities where they reside. Consequently, they are sometimes excluded from some occurrences that others experience.
Utilizing personal stories (of successes and sometimes failures), ASD parent interviews and research, I will offer suggestions for inclusion and enlighten the areas where there tends to be exclusion. My focus is the church and how church leaders may become involved in the lives of ASD parishioners to enhance inclusion in not only the church, but the school and the community as well.
My research shows that ASD parents would like their children to experience church as they have. Although willing, most churches, may lack the ability to oblige for various reasons. Schools where inclusion is not encouraged, rests primarily on the shoulders of the principals. Like pastors in churches, principals in schools have influence and can spearhead inclusion efforts in their respective entities. Community entities are willing to accommodate ASD clientele and have done so when approached to comply.
I contend where any of these entities are not willing to foster inclusion, then the church can and most often should become involved to assist, with the necessary training. In other words, the church must do what the church has always done – stand up for those who are unable to do so for themselves.
Keywords: Autism, church, community, inclusion, parents, school
Item Open Access Perceived barriers and supports to accessing community-based services for Uganda's pediatric post-surgical population.(Disability and rehabilitation, 2019-12-15) Barton, Sarah Jean; Sandhu, Sahil; Doan, Isabelle; Blanchard, Lillian; Dai, Alex; Paulenich, Alexandra; Smith, Emily R; van de Water, Brittney J; Martin, Anna H; Seider, Jasmine; Namaganda, Florence; Opolot, Shem; Ekeji, Nelia; Bility, Mathama Malakha; Bettger, Janet PrvuBackground: Access to pediatric surgical intervention in low-income countries is expanding, but investments in post-surgical care have received less attention. This study explored the barriers and supports for school-aged children to access post-surgical, community-based follow-up care in Uganda as perceived by community stakeholders.Materials and methods: This qualitative exploratory case study used in-depth, semi-structured interviews and in-country site visits among Ugandan organizations providing follow-up care to school-aged children in Uganda after surgery. Data from eight interviews and eight site visits were coded, analyzed, and cross-tabulated with a modified grounded theory approach.Results: Four key barriers to community-based follow-up care were identified: discrimination, financial barriers, geographical barriers (including transportation), and caregiver limitations to support recovery. Three key supports to successful access to and participation in community-based post-surgical recovery were identified: disability awareness, the provision of sustained follow-up care, and caregiver supports for reintegration.Conclusions: Increasing awareness of disability across local Ugandan communities, educating caregivers with accessible and culturally aware approaches, and funding sustainable follow-up care programming provide promising avenues for pediatric post-surgical recovery and community reintegration in contemporary Uganda.Implications for rehabilitationMultiple, intersecting factors prevent or promote access to post-surgical community-based services among school-aged children in Uganda.The most prominent barriers to pediatric community reintegration in Uganda include discrimination, lack of financial resources, geographical factors, and caregiver limitations.Community and interprofessional alliances must address disability awareness and sources of stigma in local contexts to promote optimal recovery and reintegration after surgery.Collaborative efforts are needed to develop sustainable funding for community-based care programs that specifically support pediatric post-surgical recovery and reintegration.Efforts to provide appropriate and empowering caregiver education are critical, particularly in geographical regions where ongoing access to rehabilitation professionals is minimal.Item Open Access Transformed by Missions: Studies in the Sacrificial, Formational, Holistic, and Transformational Aspects of Missions(2022) Rinehults, Amy LynnThe work of missions has been integral to the church’s identity since Jesus commissioned his followers to make disciples, to teach, to baptize, and to tend to the needs of his people. In the long history of the church, missions is a complicated story full of both success and failure. It is also an aspect of the church’s identity that has at times been misunderstood, even by those within the church. This project is a response to one local congregation whose attitudes about and participation in missions revealed an opportunity to develop a more complete understanding of missions.
Using Jesus’ last words to his disciples and the apostle Paul’s writings to the church at Corinth, this project builds the case that biblical missions is sacrificial, formational, holistic, and transformational. In Luke-Acts, Jesus tells the disciples to wait for the Holy Spirit before they go into all the world. They sacrifice their control, their comfort, and their preferences. In Matthew, Jesus tells the disciples not merely to go into the world, but to make disciples as they go, by baptizing and teaching. Their work is formational, as they make more disciples in the same way Jesus formed them. In John, Jesus tells Peter to tend to the physical needs of his people. The work of Peter and all subsequent disciples of Jesus is to treat the needs of others holistically, nurturing the body as well as the soul. Finally, in 2 Corinthians, Paul explains to the Corinthians how giving to the collection for Jerusalem will open the door for their own transformation. This transformation – more than the benefit to the believers in Jerusalem – is what Paul puts forward as a motivation for benevolence.
Taken together, these four truths about missions paint a picture of how and why the modern church still ought to engage in missions. The product that came out of this congregational and biblical research is a 4-session Bible study with Leader Guides that is designed to teach each of these truths. At the culmination, the Bible study participants will have the opportunity to learn more about specific missions opportunities and to find a way engage in missions through the local church.