Browsing by Author "Quirici, Marion"

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    COVID-19 and the need for disability conscious medical education, training, and practice.
    (Journal of pediatric rehabilitation medicine, 2020-01) Doebrich, Adrienne; Quirici, Marion; Lunsford, Christopher
    The COVID-19 era exposes what was already a crisis in the medical profession: structural racism, ageism, sexism, classism, and ableism resulting in healthcare disparities for Persons with Disabilities (PWD). Early research highlights these disparities, but we do not yet know the full impact of this pandemic on PWD. Over the last 20 years, many medical schools have attempted to develop disability competency trainings, but discrimination and inequities remain, resulting in a pervasive distrust of medicine by the disability community at large. In this commentary, we suggest that disability competency is insufficient because the healthcare disparities experienced by PWD are not simply a matter of individual biases, but structural and systemic factors requiring a culture shift in the healthcare professions. Recognizing that disability is a form of diversity that is experienced alongside other systemic disadvantages like social class, race, age, sex, gender identity, and geographic location, we explore the transformative potential of disability conscious medical education, training, and practice that draws on insights from intersectional disability justice activism. Disability conscious medicine is a novel approach, which improves upon competency programs by utilizing disability studies and the principles of disability justice to guide us in the critique of norms, traditions, and institutions to more fully promote the respect, beneficence, and justice that patients deserve.
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    Disability Studies
    (The Year's Work in Critical and Cultural Theory) Quirici, Marion
    Abstract This chapter reviews three books published in 2018 centering on disability and resistance. It is organized into five sections. The first, ‘Resistance, Disability, and Democracy’, summarizes debates about the political obligations of disability studies, and outlines how disability justice is replacing the former emphasis on rights. The second section, ‘Academic Perspectives’, reviews the provocative collection Manifestos for the Future of Critical Disability Studies, volume 1, identifying areas of contention and raising questions about the field’s current direction. The third section, ‘Activist Perspectives’, reviews Alice Wong’s collection Resistance and Hope: Essays by Disabled People. The fourth section, ‘Beyond Identity’, reviews Robert McRuer’s Crip Times: Disability, Globalization, and Resistance. The concluding section, ‘An Abbreviated Manifesto’, asserts the vital role of disability justice in establishing alternatives to neoliberalism, resisting tyranny, and achieving democracy.
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    Disability Studies
    (The Year's Work in Critical and Cultural Theory) Quirici, Marion
    Abstract This chapter reviews major recent publications focused on madness and neurodiversity. It is organized into four sections that explore the boundaries of mad studies and disability studies. The first section, ‘Is Mad Studies Disability Studies?’, provides a brief introduction to mad studies and asks whether it should be considered a branch of disability studies or a separate field. The second section, ‘Voices’, reviews a special issue of the Journal of Ethics in Mental Health edited by Jijian Voronka and Lucy Costa to overview how various mad studies scholars are contesting and expanding the boundaries of the field. Who is the ‘us’ of ‘nothing about us without us’? Whose voices are included, and is inclusion enough? The third section, ‘Literatures’, reviews the anthology Literatures of Madness: Disability Studies and Mental Health, edited by Elizabeth J. Donaldson, and the monograph Black Madness :: Mad Blackness by Therí Alyce Pickens, calling for deeper attention to racial difference in mad studies and suggesting that real inclusion should be transformational. The fourth section, ‘Rhetorics’, goes outside the boundaries of mad and disability studies to review Jordynn Jack’s Raveling the Brain: Toward a Transdisciplinary Neurorhetoric. The chapter calls for future scholarship that is not only transdisciplinary but also attentive to the enmeshment of mind and body, madness and disability. I argue that, while the two fields should not be collapsed, disability studies should dialogue with mad studies wherever possible, and vice versa.
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    Exploring the intersection of critical disability studies, humanities and global health through a case study of scarf injuries in Bangladesh
    (Medical Humanities) Tupetz, Anna; Quirici, Marion; Sultana, Mohsina; Hoque, Kazi Imdadul; Stewart, Kearsley Alison; Landry, Michel
    This article puts critical disability studies and global health into conversation around the phenomenon of scarf injury in Bangladesh. Scarf injury occurs when a woman wearing a long, traditional scarf called an orna rides in a recently introduced autorickshaw with a design flaw that allows the orna to become entangled in the vehicle’s driveshaft. Caught in the engine, the orna pulls the woman’s neck into hyperextension, causing a debilitating high cervical spinal cord injury and quadriplegia. The circumstances of the scarf injury reveal the need for more critical cultural analysis than the fields of global health and rehabilitation typically offer. First, the fatal design flaw of the vehicle reflects different norms of gender and dress in China, where the vehicle is manufactured, versus Bangladesh, where the vehicle is purchased at a low price and assembled on-site—a situation that calls transnational capitalist modes of production and exchange into question. Second, the experiences of women with scarf injuries entail many challenges beyond the injury itself: the transition to life with disability following the rehabilitation period is made more difficult by negative perceptions of disability, lack of resources and accessible infrastructure, and cultural norms of gender and class in Bangladesh. Our cross-disciplinary conversation about women with scarf injuries, involving critical disability studies, global health and rehabilitation experts, exposes the shortcomings of each of these fields but also illustrates the urgent need for deeper and more purposeful collaborations. We, therefore, argue that the developing subfield of global health humanities should include purposeful integration of a humanities-based critical disability studies methodology.