Browsing by Author "Sugarman, Jeremy"

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    Ethical Issues and Recommendations in Grateful Patient Fundraising and Philanthropy.
    (Academic medicine : journal of the Association of American Medical Colleges, 2018-11) Collins, Megan E; Rum, Steven; Wheeler, Jane; Antman, Karen; Brem, Henry; Carrese, Joseph; Glennon, Michelle; Kahn, Jeffrey; Ohman, E Magnus; Jagsi, Reshma; Konrath, Sara; Tovino, Stacey; Wright, Scott; Sugarman, Jeremy; Participants in the Summit on the Ethics of Grateful Patient Fundraising
    Grateful patients provide substantial philanthropic funding for health care institutions, resulting in important societal benefits. Although grateful patient fundraising (GPFR) is widespread, it raises an array of ethical issues for patients, physicians, development professionals, and institutions. These issues have not been described comprehensively, and there is insufficient guidance to inform the ethical practice of GPFR. Consequently, the authors convened a "Summit on the Ethics of Grateful Patient Fundraising," with the goal of identifying primary ethical issues in GPFR and offering recommendations regarding how to manage them. Participants were 29 experts from across the United States who represented the perspectives of bioethics, clinical practice, development, law, patients, philanthropy, psychology, and regulatory compliance. Intensive discussions resulted in articulating ethical issues for physicians and other clinicians (discussions with patients about philanthropy; physician-initiated discussions; clinically vulnerable patients; conflicts of obligation and equity regarding physician's time, attention, and responsiveness and the provision of special services; and transparency and respecting donor intent) as well as for development officers and institutions (transparency in the development professional-donor relationship; impact on clinical care; confidentiality and privacy; conflicts of interest; institution-patient/donor relationship; concierge services for grateful patients; scientific merit and research integrity; transparency in use of philanthropic gifts; and institutional policies and training in responsible GPFR). While these recommendations promise to mitigate some of the ethical issues associated with GPFR, important next steps include conducting research on the ethical issues in GPFR, disseminating these recommendations, developing standardized training for clinicians regarding them, and revising them as warranted.
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    Guidelines for international service learning programs.
    (Dev World Bioeth, 2011-12) Crump, John A; Sugarman, Jeremy
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    Post-trial responsibilities in pragmatic clinical trials: Fulfilling the promise of research to drive real-world change
    (Learning Health Systems, 2024-01-01) Morain, Stephanie R; O'Rourke, P Pearl; Ali, Joseph; Rahimzadeh, Vasiliki; Check, Devon K; Bosworth, Hayden B; Sugarman, Jeremy
    While considerable scholarship has explored responsibilities owed to research participants at the conclusion of explanatory clinical trials, no guidance exists regarding responsibilities owed at the conclusion of a pragmatic clinical trial (PCT). Yet post-trial responsibilities in PCTs present distinct considerations from those emphasized in existing guidance and prior scholarship. Among these considerations include the responsibilities of the healthcare delivery systems in which PCTs are embedded, and decisions about implementation for interventions that demonstrate meaningful benefit following their integration into usual care settings—or deimplementation for those that fail to do so. In this article, we present an overview of prior scholarship and guidance on post-trial responsibilities, and then identify challenges for post-trial responsibilities for PCTs. We argue that, given one of the key rationales for PCTs is that they can facilitate uptake of their results by relevant decision-makers, there should be a presumptive default that PCT study results be incorporated into future care delivery processes. Fulfilling this responsibility will require prospective planning by researchers, healthcare delivery system leaders, institutional review boards, and sponsors, so as to ensure that the knowledge gained from PCTs does, in fact, influence real-world practice.
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    Tb in a global health exchange program.
    (J Gen Intern Med, 2012-01) Decamp, Matthew; Crump, John A; Rodriguez, Joce; Richardson, Gene; Barry, Michele; Sugarman, Jeremy