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Acquisition, Analysis, and Sharing of Data in 2015 and Beyond: A Survey of the Landscape: A Conference Report From the American Heart Association Data Summit 2015.

dc.contributor.author American Heart Association Data Sharing Summit Attendees
dc.contributor.author Antman, EM
dc.contributor.author Bauman, MA
dc.contributor.author Benjamin, EJ
dc.contributor.author Brown, N
dc.contributor.author Bufalino, V
dc.contributor.author Califf, Robert M
dc.contributor.author Creager, MA
dc.contributor.author Daugherty, A
dc.contributor.author DeMets, David Leon
dc.contributor.author Dennis, BP
dc.contributor.author Ebadollahi, S
dc.contributor.author Harrington, Robert Arthur
dc.contributor.author Houser, SR
dc.contributor.author Jessup, M
dc.contributor.author Lauer, MS
dc.contributor.author Lo, B
dc.contributor.author MacRae, CA
dc.contributor.author McConnell, MV
dc.contributor.author McCray, AT
dc.contributor.author Mello, MM
dc.contributor.author Mueller, E
dc.contributor.author Newburger, JW
dc.contributor.author Okun, S
dc.contributor.author Packer, M
dc.contributor.author Peterson, Eric David
dc.contributor.author Philippakis, A
dc.contributor.author Ping, P
dc.contributor.author Prasoon, P
dc.contributor.author Roger, VL
dc.contributor.author Singer, S
dc.contributor.author Temple, Robert
dc.contributor.author Turner, MB
dc.contributor.author Vigilante, K
dc.contributor.author Warner, John Jay
dc.contributor.author Wayte, P
dc.coverage.spatial England
dc.date.accessioned 2017-07-06T13:19:09Z
dc.date.available 2017-07-06T13:19:09Z
dc.date.issued 2015-11-05
dc.identifier https://www.ncbi.nlm.nih.gov/pubmed/26541391
dc.identifier JAHA.115.002810
dc.identifier.uri https://hdl.handle.net/10161/14989
dc.description.abstract BACKGROUND: A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies in the Big Data area. The concepts evolving from this forum may also inform other fields of medicine and science. METHODS AND RESULTS: A total of 47 participants representing stakeholders from 7 domains (patients, basic scientists, clinical investigators, population researchers, clinicians and healthcare system administrators, industry, and regulatory authorities) participated in the conference. Presentation topics included updates on data as viewed from conventional medical and nonmedical sources, building and using Big Data repositories, articulation of the goals of data sharing, and principles of responsible data sharing. Facilitated breakout sessions were conducted to examine what each of the 7 stakeholder domains wants from Big Data under ideal circumstances and the possible roles that the AHA might play in meeting their needs. Important areas that are high priorities for further study regarding Big Data include a description of the methodology of how to acquire and analyze findings, validation of the veracity of discoveries from such research, and integration into investigative and clinical care aspects of future cardiovascular and stroke medicine. Potential roles that the AHA might consider include facilitating a standards discussion (eg, tools, methodology, and appropriate data use), providing education (eg, healthcare providers, patients, investigators), and helping build an interoperable digital ecosystem in cardiovascular and stroke science. CONCLUSION: There was a consensus across stakeholder domains that Big Data holds great promise for revolutionizing the way cardiovascular and stroke research is conducted and clinical care is delivered; however, there is a clear need for the creation of a vision of how to use it to achieve the desired goals. Potential roles for the AHA center around facilitating a discussion of standards, providing education, and helping establish a cardiovascular digital ecosystem. This ecosystem should be interoperable and needs to interface with the rapidly growing digital object environment of the modern-day healthcare system.
dc.language eng
dc.relation.ispartof J Am Heart Assoc
dc.relation.isversionof 10.1161/JAHA.115.002810
dc.subject AHA Scientific Statements
dc.subject clinical trials
dc.subject data
dc.subject epidemiology
dc.subject ethics
dc.subject mobile health
dc.subject preclinical
dc.subject Access to Information
dc.subject American Heart Association
dc.subject Biomedical Research
dc.subject Cardiology
dc.subject Cardiovascular Diseases
dc.subject Consensus
dc.subject Cooperative Behavior
dc.subject Data Mining
dc.subject Databases, Factual
dc.subject Diffusion of Innovation
dc.subject Forecasting
dc.subject Humans
dc.subject Information Dissemination
dc.subject Interdisciplinary Communication
dc.subject Stroke
dc.subject United States
dc.title Acquisition, Analysis, and Sharing of Data in 2015 and Beyond: A Survey of the Landscape: A Conference Report From the American Heart Association Data Summit 2015.
dc.type Journal article
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/26541391
pubs.issue 11
pubs.organisational-group Clinical Science Departments
pubs.organisational-group Duke
pubs.organisational-group Duke Clinical Research Institute
pubs.organisational-group Institutes and Centers
pubs.organisational-group Medicine
pubs.organisational-group Medicine, Cardiology
pubs.organisational-group School of Medicine
pubs.publication-status Published online
pubs.volume 4
dc.identifier.eissn 2047-9980


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