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Validation and Quality Assessment of the Kilimanjaro Cancer Registry.

dc.contributor.author Bartlett, J
dc.contributor.author Karia, Francis
dc.contributor.author Maro, Venance P
dc.contributor.author Msomba, A
dc.contributor.author Muiruri, Charles
dc.contributor.author Munishi, Oresto Michael
dc.contributor.author Namwai, T
dc.contributor.author Nyindo, P
dc.contributor.author Schroeder, Kristin M
dc.contributor.author Silayo, E
dc.contributor.author Zafar, Syed Yousuf
dc.contributor.author Zullig, Leah L
dc.coverage.spatial United States
dc.date.accessioned 2017-08-01T05:52:38Z
dc.date.available 2017-08-01T05:52:38Z
dc.date.issued 2016-12
dc.identifier https://www.ncbi.nlm.nih.gov/pubmed/28717724
dc.identifier 002873
dc.identifier.issn 2378-9506
dc.identifier.uri http://hdl.handle.net/10161/15102
dc.description.abstract PURPOSE: Global cancer burden has increasingly shifted to low- and middle-income countries and is particularly pronounced in Africa. There remains a lack of comprehensive cancer information as a result of limited cancer registry development. In Moshi, Tanzania, a regional cancer registry exists at Kilimanjaro Christian Medical Center. Data quality is unknown. Our objective was to evaluate the completeness and quality of the Kilimanjaro Cancer Registry (KCR). METHODS: In October 2015, we conducted a retrospective review of KCR by validating the internal consistency of registry records with medical and pathology records. We randomly sampled approximately 100 total registry cases. Four reviewers not associated with the KCR manually collected data elements from medical records and compared them with KCR data. RESULTS: All 100 reviewed registry cases had complete cancer site and morphology included in the registry. Six had a recorded stage. For the majority (n = 92), the basis of diagnosis was pathology. Pathology reports were found in the medical record for 40% of patients; for the remainder, these were stored separately in the pathology department. Of sampled registry cases, the KCR and medical records were 98% and 94% concordant for primary cancer site and morphology, respectively. For 28%, recorded diagnosis dates were within 14 days of what was found in the medical record, and for 32%, they were within 30 days. CONCLUSION: The KCR has a high level of concordance for classification and coding when data are retrieved for validation. This parameter is one of the most important for measuring data quality in a regional cancer registry.
dc.language eng
dc.relation.ispartof J Glob Oncol
dc.relation.isversionof 10.1200/JGO.2015.002873
dc.title Validation and Quality Assessment of the Kilimanjaro Cancer Registry.
dc.type Journal article
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/28717724
pubs.begin-page 381
pubs.end-page 386
pubs.issue 6
pubs.organisational-group Clinical Science Departments
pubs.organisational-group Duke
pubs.organisational-group Pediatrics
pubs.organisational-group Pediatrics, Hematology-Oncology
pubs.organisational-group School of Medicine
pubs.publication-status Published online
pubs.volume 2


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