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The Challenge of Community Representation.

dc.contributor.author Lawrence, C
dc.contributor.author Stewart, K
dc.coverage.spatial United States
dc.date.accessioned 2018-03-01T15:22:29Z
dc.date.available 2018-03-01T15:22:29Z
dc.date.issued 2016-10
dc.identifier https://www.ncbi.nlm.nih.gov/pubmed/27552841
dc.identifier 1556264616665760
dc.identifier.uri https://hdl.handle.net/10161/16128
dc.description.abstract Although community advisory boards (CABs) are widely used in clinical research, there is limited data regarding their composition and structure, especially in Africa. Our research provides the first qualitative study of the membership practices, selection methods, and qualifications of the six major HIV research centers that comprise the Ugandan National CAB Network (UNCN). Researchers conducted interviews ( n = 45) with CAB members and research liaisons at each of the sites. While selection practices and demographics varied between the sites, all six CABs exclusively followed a broad community membership model. Results suggest successful CABs are context dependent and thus distinct guidelines may be needed based on variables including CAB funding level, representation model, and research focus.
dc.language eng
dc.relation.ispartof J Empir Res Hum Res Ethics
dc.relation.isversionof 10.1177/1556264616665760
dc.subject Africa
dc.subject CABs
dc.subject HIV/AIDS
dc.subject Uganda
dc.subject broad community versus population-specific membership model
dc.subject clinical trials
dc.subject community advisory boards
dc.subject research ethics
dc.subject Advisory Committees
dc.subject Biomedical Research
dc.subject Community-Based Participatory Research
dc.subject Community-Institutional Relations
dc.subject HIV Infections
dc.subject Humans
dc.subject Residence Characteristics
dc.subject Uganda
dc.title The Challenge of Community Representation.
dc.type Journal article
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/27552841
pubs.begin-page 311
pubs.end-page 321
pubs.issue 4
pubs.organisational-group Duke
pubs.organisational-group Duke Global Health Institute
pubs.organisational-group Duke Science & Society
pubs.organisational-group Initiatives
pubs.organisational-group Institutes and Provost's Academic Units
pubs.organisational-group University Institutes and Centers
pubs.publication-status Published
pubs.volume 11
dc.identifier.eissn 1556-2654


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