Skip to main content
Duke University Libraries
DukeSpace Scholarship by Duke Authors
  • Login
  • Ask
  • Menu
  • Login
  • Ask a Librarian
  • Search & Find
  • Using the Library
  • Research Support
  • Course Support
  • Libraries
  • About
View Item 
  •   DukeSpace
  • Duke Scholarly Works
  • Scholarly Articles
  • View Item
  •   DukeSpace
  • Duke Scholarly Works
  • Scholarly Articles
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

Perspectives on Inflammatory Breast Cancer (IBC) Research, Clinical Management and Community Engagement from the Duke IBC Consortium.

Thumbnail
View / Download
531.6 Kb
Date
2019-01
Authors
Devi, Gayathri R
Hough, Holly
Barrett, Nadine
Cristofanilli, Massimo
Overmoyer, Beth
Spector, Neil
Ueno, Naoto T
Woodward, Wendy
Kirkpatrick, John
Vincent, Benjamin
Williams, Kevin P
Finley, Charlotte
Duff, Brandi
Worthy, Valarie
McCall, Shannon
Hollister, Beth A
Palmer, Greg
Force, Jeremy
Westbrook, Kelly
Fayanju, Oluwadamilola
Suneja, Gita
Dent, Susan F
Hwang, E Shelley
Patierno, Steven R
Marcom, P Kelly
Show More
(25 total)
Repository Usage Stats
112
views
36
downloads
Abstract
Inflammatory breast cancer (IBC) is an understudied and aggressive form of breast cancer with a poor prognosis, accounting for 2-6% of new breast cancer diagnoses but 10% of all breast cancer-related deaths in the United States. Currently there are no therapeutic regimens developed specifically for IBC, and it is critical to recognize that all aspects of treating IBC - including staging, diagnosis, and therapy - are vastly different than other breast cancers. In December 2014, under the umbrella of an interdisciplinary initiative supported by the Duke School of Medicine, researchers, clinicians, research administrators, and patient advocates formed the Duke Consortium for IBC to address the needs of patients in North Carolina (an ethnically and economically diverse state with 100 counties) and across the Southeastern United States. The primary goal of this group is to translate research into action and improve both awareness and patient care through collaborations with local, national and international IBC programs. The consortium held its inaugural meeting on Feb 28, 2018, which also marked Rare Disease Day and convened national research experts, clinicians, patients, advocates, government representatives, foundation leaders, staff, and trainees. The meeting focused on new developments and challenges in the clinical management of IBC, research challenges and opportunities, and an interactive session to garner input from patients, advocates, and community partners that would inform a strategic plan toward continuing improvements in IBC patient care, research, and education.
Type
Journal article
Subject
advocacy
breast cancer
community engagement
inflammatory breast cancer
orphan disease
patient-centered
Permalink
https://hdl.handle.net/10161/19129
Published Version (Please cite this version)
10.7150/jca.31176
Publication Info
Devi, Gayathri R; Hough, Holly; Barrett, Nadine; Cristofanilli, Massimo; Overmoyer, Beth; Spector, Neil; ... Marcom, P Kelly (2019). Perspectives on Inflammatory Breast Cancer (IBC) Research, Clinical Management and Community Engagement from the Duke IBC Consortium. Journal of Cancer, 10(15). pp. 3344-3351. 10.7150/jca.31176. Retrieved from https://hdl.handle.net/10161/19129.
This is constructed from limited available data and may be imprecise. To cite this article, please review & use the official citation provided by the journal.
Collections
  • Scholarly Articles
More Info
Show full item record

Scholars@Duke

Barrett

Nadine J Barrett

Associate Professor in Family Medicine and Community Health
Dr. Nadine J. Barrett is an Associate Professor in the Department of Family Medicine and Community Health at Duke University. She currently hold senior leadership roles as CTSI Co-Director for Equity and Stakeholder Strategy and the Inaugural Director of The Center for Equity in Research in the Duke Clinical Translational Science Institute, and Associate Director for Equity and Stakeholder Strategy, Duke Cancer Institute. A medical sociologist by training, Dr. Barrett is
Dent

Susan Faye Dent

Professor of Medicine
Medical Oncologist with a focus on breast cancerAssociate Director of Breast Cancer Clinical ResearchCo-Director Duke Cardio-Oncology Program
Devi

Gayathri R. Devi

Professor in Surgery
Dr. Devi’s research interests include functional genomics, anti-cancer drug discovery and development, mechanisms of cancer cell signaling, tumor immunity and applications thereof for overcoming therapeutic resistance in cancer. The lab has established prostate, inflammatory breast cancer and ovarian cellular and tumor models.
Fayanju

Oluwadamilola Motunrayo Fayanju

Associate Professor of Surgery
Dr. Fayanju is an Associate Professor of Surgery and Population Health Sciences in the Duke University School of Medicine, Associate Director for Disparities & Value in Healthcare with Duke Forge (the university’s center for actionable data science: https://forge.duke.edu/oluwadamilola-fayanju-md-ma-mphs), and Director of the Durham VA Breast Clinic. She received her undergraduate degree in History and
Force

Jeremy M Force

Assistant Professor of Medicine

Holly Hough

Dir, Office for Physician Scientist Dev
Hwang

Eun-Sil Shelley Hwang

Mary and Deryl Hart Distinguished Professor of Surgery, in the School of Medicine
Kirkpatrick

John P. Kirkpatrick

Professor of Radiation Oncology
Malignant and benign tumors of the brain, spine and base of skull. Mathematical modelling of tumor metabolism, mass transfer and the response to ionizing radiation. Enhancing clinical outcome in stereotactic radiosurgery, fractionated stereotactic radiotherapy and stereotactic body radiotherapy.
Marcom

Paul Kelly Marcom

Adjunct Professor in the Department of Medicine
Basic Science: -Germline and somatic genetic changes in breast cancer. Translational: -Identification and management of individuals and families with hereditary cancer risk. -Communication of cancer risk information to individuals and families. -Breast cancer prevention. -Optimizing management of early breast cancer. -Treatment of metastatic breast cancer Clinically, Dr. Marcom works as a medical oncologist in the multidisciplina
McCall

Shannon Jones McCall

Associate Professor of Pathology
As Vice Chair for Translational Research in the Department of Pathology, I am involved in numerous translational cancer research projects that rely on the study of human biological samples.  I am the director of the Duke BioRepository & Precision Pathology Center (Duke BRPC), a shared resource of the School of Medicine and the Duke Cancer Institute.  I serve as the PI for the National Cancer Institute's Cooperative Human Tissue Network Southern Division (a five-year UM1 grant), whi
Palmer

Gregory M. Palmer

Associate Professor of Radiation Oncology
Greg Palmer obtained his B.S. in Biomedical Engineering from Marquette University in 2000, after which he obtained his Ph.D. in BME from the University of Wisconsin, Madison. He is currently an Associate Professor in the Department of Radiation Oncology, Cancer Biology Division at Duke University Medical Center. His primary research focus has been identifying and exploiting the changes in absorption, scattering, and fluorescence properties of tissue associated with cancer progression and therape
Patierno

Steven Patierno

Charles D. Watts Distinguished Professor of Medicine
Patierno's current translational research interests are focused on the genomics molecular biology of cancer disparities, cancer biology, molecular pharmacology and targeted experimental therapeutics to control prostate, breast and lung tumor aggressiveness. He is an internationally recognized expert in cancer control, cancer causation and molecular carcinogenesis, which includes a broad spectrum of laboratory and population level research.   Patierno is also actively engaged
Spector

Neil Lee Spector

Sandra Coates Associate Professor
This author no longer has a Scholars@Duke profile, so the information shown here reflects their Duke status at the time this item was deposited.
Suneja

Gita Suneja

Associate Professor of Radiation Oncology
More Authors
Alphabetical list of authors with Scholars@Duke profiles.
Open Access

Articles written by Duke faculty are made available through the campus open access policy. For more information see: Duke Open Access Policy

Rights for Collection: Scholarly Articles


Works are deposited here by their authors, and represent their research and opinions, not that of Duke University. Some materials and descriptions may include offensive content. More info

Make Your Work Available Here

How to Deposit

Browse

All of DukeSpaceCommunities & CollectionsAuthorsTitlesTypesBy Issue DateDepartmentsAffiliations of Duke Author(s)SubjectsBy Submit DateThis CollectionAuthorsTitlesTypesBy Issue DateDepartmentsAffiliations of Duke Author(s)SubjectsBy Submit Date

My Account

LoginRegister

Statistics

View Usage Statistics
Duke University Libraries

Contact Us

411 Chapel Drive
Durham, NC 27708
(919) 660-5870
Perkins Library Service Desk

Digital Repositories at Duke

  • Report a problem with the repositories
  • About digital repositories at Duke
  • Accessibility Policy
  • Deaccession and DMCA Takedown Policy

TwitterFacebookYouTubeFlickrInstagramBlogs

Sign Up for Our Newsletter
  • Re-use & Attribution / Privacy
  • Harmful Language Statement
  • Support the Libraries
Duke University