A content analysis of the views of genetics professionals on race, ancestry, and genetics.
Repository Usage Stats
Over the past decade, the proliferation of genetic studies on human health and disease has reinvigorated debates about the appropriate role of race and ancestry in research and clinical care. Here we report on the responses of genetics professionals to a survey about their views on race, genetics, and ancestry across the domains of science, medicine, and society. Through a qualitative content analysis of free-text comments from 515 survey respondents, we identified key themes pertaining to multiple meanings of race, the use of race as a proxy for genetic ancestry, and the relevance of race and ancestry to health. Our findings suggest that for many genetics professionals the questions of what race is and what race means remain both professionally and personally contentious. Looking ahead as genomics is translated into the practice of precision medicine and as learning health care systems offer continued improvements in care through integrated research, we argue for nuanced considerations of both race and genetic ancestry across research and care settings.
Published Version (Please cite this version)10.1080/23294515.2018.1544177
Publication InfoNelson, Sarah C; Yu, Joon-Ho; Wagner, Jennifer K; Harrell, Tanya M; Royal, Charmaine D; & Bamshad, Michael J (2018). A content analysis of the views of genetics professionals on race, ancestry, and genetics. AJOB empirical bioethics, 9(4). pp. 222-234. 10.1080/23294515.2018.1544177. Retrieved from https://hdl.handle.net/10161/19162.
This is constructed from limited available data and may be imprecise. To cite this article, please review & use the official citation provided by the journal.
More InfoShow full item record
Charmaine DM Royal
Robert O. Keohane Professor
Charmaine Royal is the Robert O. Keohane Professor of African & African American Studies, Biology, Global Health, and Family Medicine & Community Health at Duke University. She directs the Center on Genomics, Race, Identity, Difference and the Center for Truth, Racial Healing & Transformation. Dr. Royal’s research, scholarship, and teaching focus on ethical, social, scientific, and clinical implications of human genetics and genomics, particularly issues at the inter
Articles written by Duke faculty are made available through the campus open access policy. For more information see: Duke Open Access Policy
Rights for Collection: Scholarly Articles
Works are deposited here by their authors, and represent their research and opinions, not that of Duke University. Some materials and descriptions may include offensive content. More info