Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change.
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Healthcare institutions may often prohibit "cold-calling" or direct contact with a potential research participant when the person initiating contact is unknown to the patient. This policy aims to maintain patient privacy, but may have unintended consequences as a result of physician gatekeeping. In this review, we discuss recruitment policies at the top academic institutions. We propose an ethical framework for evaluating cold-call policies based on three principles of research ethics. In order to maximize engagement of potential research participants, while maintaining patient privacy and autonomy, we then propose several alternative solutions to restrictive cold-call policies, including opt-in or opt-out platforms, a team-based approach, electronic solutions, and best practices for recruitment. As healthcare has evolved with more collaborative, patient-centered, data-driven care, the engagement of potential research participants should similarly evolve.
health system research
Published Version (Please cite this version)10.1017/cts.2019.1
Publication InfoHernandez, Adrian; Swamy, Geeta; & McHugh, Kelly R (2018). Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change. Journal of clinical and translational science, 2(6). pp. 384-392. 10.1017/cts.2019.1. Retrieved from https://hdl.handle.net/10161/19266.
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Professor of Medicine
Associate Professor of Obstetrics and Gynecology
Dr. Geeta Swamy, MD, became Vice Chair for Research and Faculty Development in the Department of Obstetrics and Gynecology on March 1, 2018. In this dual role, Dr. Swamy oversees strategic development and administration of the Department’s basic, translational and clinical research programs, as well as implements and oversees programs to support development and mentorship for all faculty at all levels. Dr. Swamy has also been instrumental in developing and leading the School of
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