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A strategy to advance the evidence base in palliative medicine: formation of a palliative care research cooperative group.

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Date
2010-12
Authors
Abernethy, Amy P
Aziz, Noreen M
Basch, Ethan
Bull, Janet
Cleeland, Charles S
Currow, David C
Fairclough, Diane
Hanson, Laura
Hauser, Joshua
Ko, Danielle
Lloyd, Linda
Morrison, R Sean
Otis-Green, Shirley
Pantilat, Steve
Portenoy, Russell K
Ritchie, Christine
Rocker, Graeme
Wheeler, Jane L
Zafar, S Yousuf
Kutner, Jean S
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(20 total)
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Abstract
BACKGROUND: Palliative medicine has made rapid progress in establishing its scientific and clinical legitimacy, yet the evidence base to support clinical practice remains deficient in both the quantity and quality of published studies. Historically, the conduct of research in palliative care populations has been impeded by multiple barriers including health care system fragmentation, small number and size of potential sites for recruitment, vulnerability of the population, perceptions of inappropriateness, ethical concerns, and gate-keeping. METHODS: A group of experienced investigators with backgrounds in palliative care research convened to consider developing a research cooperative group as a mechanism for generating high-quality evidence on prioritized, clinically relevant topics in palliative care. RESULTS: The resulting Palliative Care Research Cooperative (PCRC) agreed on a set of core principles: active, interdisciplinary membership; commitment to shared research purposes; heterogeneity of participating sites; development of research capacity in participating sites; standardization of methodologies, such as consenting and data collection/management; agile response to research requests from government, industry, and investigators; focus on translation; education and training of future palliative care researchers; actionable results that can inform clinical practice and policy. Consensus was achieved on a first collaborative study, a randomized clinical trial of statin discontinuation versus continuation in patients with a prognosis of less than 6 months who are taking statins for primary or secondary prevention. This article describes the formation of the PCRC, highlighting processes and decisions taken to optimize the cooperative group's success.
Type
Journal article
Subject
Cooperative Behavior
Evidence-Based Medicine
Health Services Research
Humans
Palliative Care
Permalink
https://hdl.handle.net/10161/3239
Published Version (Please cite this version)
10.1089/jpm.2010.0261
Publication Info
Abernethy, Amy P; Aziz, Noreen M; Basch, Ethan; Bull, Janet; Cleeland, Charles S; Currow, David C; ... Kutner, Jean S (2010). A strategy to advance the evidence base in palliative medicine: formation of a palliative care research cooperative group. J Palliat Med, 13(12). pp. 1407-1413. 10.1089/jpm.2010.0261. Retrieved from https://hdl.handle.net/10161/3239.
This is constructed from limited available data and may be imprecise. To cite this article, please review & use the official citation provided by the journal.
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Scholars@Duke

Abernethy

Amy Pickar Abernethy

Adjunct Professor in the Department of Medicine
Amy P. Abernethy, MD PhDDirector, Center for Learning Health Care Director, Duke Cancer Care Research Program Professor of Medicine, Department of Medicine, Division of Medical Oncology, Duke University School of Medicine Associate Professor of Nursing, Duke University School of NursingDr. Abernethy, a hematologist/oncologist and palliative care physician, is Professor of Medicine in the Duke University School of Medicine, Director of the Duke Center for Learn
This author no longer has a Scholars@Duke profile, so the information shown here reflects their Duke status at the time this item was deposited.
Zafar

Syed Yousuf Zafar

Adjunct Professor in the Department of Medicine
Dr. Zafar is a gastrointestinal medical oncologist and Associate Professor of Medicine, Public Policy, and Population Health Science at the Duke Cancer Institute and Duke-Margolis Center for Health Policy. He serves as Director of Healthcare Innovation at the Duke Cancer Institute. Dr. Zafar also serves as Clinical Associate Director of Duke Forge (Health Data Science Center). Dr. Zafar is considered an international expert in identifying and intervening upon the financial burden of cancer ca
Alphabetical list of authors with Scholars@Duke profiles.
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