Selecting renal replacement therapies: what do African American and non-African American patients and their families think others should know? A mixed methods study.
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BACKGROUND: Little is known regarding the types of information African American and non-African American patients with chronic kidney disease (CKD) and their families need to inform renal replacement therapy (RRT) decisions. METHODS: In 20 structured group interviews, we elicited views of African American and non-African American patients with CKD and their families about factors that should be addressed in educational materials informing patients' RRT selection decisions. We asked participants to select factors from a list and obtained their open-ended feedback. RESULTS: Ten groups of patients (5 African American, 5 non-African American; total 68 individuals) and ten groups of family members (5 African American, 5 non-African American; total 62 individuals) participated. Patients and families had a range (none to extensive) of experiences with various RRTs. Patients identified morbidity or mortality, autonomy, treatment delivery, and symptoms as important factors to address. Family members identified similar factors but also cited the effects of RRT decisions on patients' psychological well-being and finances. Views of African American and non-African American participants were largely similar. CONCLUSIONS: Educational resources addressing the influence of RRT selection on patients' morbidity and mortality, autonomy, treatment delivery, and symptoms could help patients and their families select RRT options closely aligned with their values. Including information about the influence of RRT selection on patients' personal relationships and finances could enhance resources' cultural relevance for African Americans.
Aged, 80 and over
Attitude to Health
Patient Education as Topic
Renal Replacement Therapy
Published Version (Please cite this version)10.1186/1471-2369-14-9
Publication InfoDePasquale, Nicole; Ephraim, Patti L; Ameling, Jessica; Lewis-Boyér, Lapricia; Crews, Deidra C; Greer, Raquel C; ... Boulware, L Ebony (2013). Selecting renal replacement therapies: what do African American and non-African American patients and their families think others should know? A mixed methods study. BMC Nephrol, 14. pp. 9. 10.1186/1471-2369-14-9. Retrieved from https://hdl.handle.net/10161/8330.
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Eleanor Easley Distinguished Professor in the School of Medicine
Dr. Boulware is the Eleanor Easley Distinguished Professor in the Duke University School of Medicine. She serves as Chief of the Division of General Internal Medicine in the Department of Medicine, Vice Dean for Translational Science, and Associate Vice Chancellor for Translational Research at Duke. She is a general internist and clinical epidemiologist. She studies mechanisms to improve the quality and equity of health care and health outcomes for individuals and populations affected by chro
Assistant Professor in Medicine
I am a social/health psychologist with training in psychology, sociology, and communication (BA, Rutgers University); public health (MSPH, Johns Hopkins Bloomberg School of Public Health); and human development and family studies (PhD, The Pennsylvania State University). I have two lines of research that aim to improve the health, well-being, and family relationships of caregivers in the context of middle and late adulthood. The first focuses on the work/nonwork interface of long-
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