Harm, hype and evidence: ELSI research and policy guidance.
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There has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. This research should inform the development of the relevant policy. So far, much of the relevant policy - such as in the areas of patents, genetic testing and genetic discrimination - seems to be informed more by speculation of harm and anecdote than by available evidence. Although a quest for evidence cannot always be allowed to delay policy choice, it seems axiomatic to us that policy options are improved by the incorporation of evidence.
Published Version (Please cite this version)10.1186/gm425
Publication InfoCaulfield, Timothy; Chandrasekharan, Subhashini; Joly, Yann; & Cook-Deegan, Robert (2013). Harm, hype and evidence: ELSI research and policy guidance. Genome Med, 5(3). pp. 21. 10.1186/gm425. Retrieved from https://hdl.handle.net/10161/8934.
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Assistant Research Professor of Global Health
Research Professor in the Sanford School of Public Policy
Robert Cook-Deegan is a research professor in the Sanford School of Public Policy, with secondary appointments in Internal Medicine (School of Medicine), and Biology (Trinity College of Arts & Sciences). He was the founding director for Genome Ethics, Law & Policy in Duke’s Institute for Genome Sciences & Policy from July 2002 through December 2012. He is the author of The Gene Wars: Science, Politics, and the Human Genome and an author on over 250 art
This author no longer has a Scholars@Duke profile, so the information shown here reflects their Duke status at the time this item was deposited.
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