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PARTAKE survey of public knowledge and perceptions of clinical research in India.

dc.contributor.author Alam, S Munir
dc.contributor.author Alapati, B
dc.contributor.author Burt, T
dc.contributor.author Dhillon, S
dc.contributor.author Jain, S
dc.contributor.author Khan, D
dc.contributor.author Mittal, S
dc.contributor.author Mv, D
dc.contributor.author Sharma, P
dc.contributor.author Singh, P
dc.coverage.spatial United States
dc.date.accessioned 2015-01-15T14:03:52Z
dc.date.issued 2013
dc.identifier http://www.ncbi.nlm.nih.gov/pubmed/23874712
dc.identifier PONE-D-13-14775
dc.identifier.uri https://hdl.handle.net/10161/9360
dc.description.abstract BACKGROUND: A public that is an informed partner in clinical research is important for ethical, methodological, and operational reasons. There are indications that the public is unaware or misinformed, and not sufficiently engaged in clinical research but studies on the topic are lacking. PARTAKE - Public Awareness of Research for Therapeutic Advancements through Knowledge and Empowerment is a program aimed at increasing public awareness and partnership in clinical research. The PARTAKE Survey is a component of the program. OBJECTIVE: To study public knowledge and perceptions of clinical research. METHODS: A 40-item questionnaire combining multiple-choice and open-ended questions was administered to 175 English- or Hindi-speaking individuals in 8 public locations representing various socioeconomic strata in New Delhi, India. RESULTS: Interviewees were 18-84 old (mean: 39.6, SD ± 16.6), 23.6% female, 68.6% employed, 7.3% illiterate, 26.3% had heard of research, 2.9% had participated and 58.9% expressed willingness to participate in clinical research. The following perceptions were reported (% true/% false/% not aware): 'research benefits society' (94.1%/3.5%/2.3%), 'the government protects against unethical clinical research' (56.7%/26.3%/16.9%), 'research hospitals provide better care' (67.2%/8.7%/23.9%), 'confidentiality is adequately protected' (54.1%/12.3%/33.5%), 'participation in research is voluntary' (85.3%/5.8%/8.7%); 'participants treated like 'guinea pigs'' (20.7%/53.2%/26.0%), and 'compensation for participation is adequate' (24.7%/12.9%/62.3%). CONCLUSIONS: Results suggest the Indian public is aware of some key features of clinical research (e.g., purpose, value, voluntary nature of participation), and supports clinical research in general but is unaware of other key features (e.g., compensation, confidentiality, protection of human participants) and exhibits some distrust in the conduct and reporting of clinical trials. Larger, cross-cultural surveys are required to inform educational programs addressing these issues.
dc.language eng
dc.relation.ispartof PLoS One
dc.relation.isversionof 10.1371/journal.pone.0068666
dc.subject Adolescent
dc.subject Adult
dc.subject Aged
dc.subject Aged, 80 and over
dc.subject Biomedical Research
dc.subject Female
dc.subject Humans
dc.subject India
dc.subject Male
dc.subject Middle Aged
dc.subject Public Opinion
dc.subject Surveys and Questionnaires
dc.subject Young Adult
dc.title PARTAKE survey of public knowledge and perceptions of clinical research in India.
dc.type Journal article
pubs.author-url http://www.ncbi.nlm.nih.gov/pubmed/23874712
pubs.begin-page e68666
pubs.issue 7
pubs.organisational-group Duke
pubs.organisational-group Faculty
pubs.publication-status Published online
pubs.volume 8
dc.identifier.eissn 1932-6203


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