Trust in Community-Engaged Research Partnerships: A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative.

Kim, Mimi M

Cheney, Ann

Black, Anita

Thorpe, Roland J

Cene, Crystal Wiley

Dave, Guarav J

Schaal, Jennifer

Vassar, Stefanie

Ruktanonchai, Corrine

Frerichs, Leah

Young, Tiffany

Jones, Jennifer

Burke, Jessica

Varma, Deepthi

Striley, Catherine

Cottler, Linda

Brown, Arleen

Sullivan, Greer

Corbie-Smith, Giselle

2024-04-01T16:24:58Z

2024-04-01T16:24:58Z

2020-09

Community-engaged research (CEnR) builds on the strengths of the Clinical and Translational Science Awards (CTSA) framework to address health in underserved and minority communities. There is a paucity of studies that identify the process from which trust develops in CEnR partnerships. This study responds to the need for empirical investigation of building and maintaining trust from a multistakeholder perspective. We conducted a multi-institutional pilot study using concept mapping with to better understand how trust, a critical outcome of CEnR partnerships, can act as "social capital." Concept mapping was used to collect data from the three stakeholder groups: community, health-care, and academic research partners across three CTSAs. Concept mapping is a mixed-methods approach that allows participants to brainstorm and identify factors that contribute to a concept and describe ways in which those factors relate to each other. This study offers important insights on developing an initial set of trust measures that can be used across CTSAs to understand differences and similarities in conceptualization of trust among key stakeholder groups, track changes in public trust in research, identify both positive and negative aspects of trust, identify characteristics that maintain trust, and inform the direction for future research.

0163-2787

1552-3918

https://hdl.handle.net/10161/30443

eng

SAGE Publications

Evaluation & the health professions

10.1177/0163278718819719

https://creativecommons.org/licenses/by-nc/4.0

Humans

Cooperative Behavior

Trust

Residence Characteristics

Research Design

Research Support as Topic

Community-Based Participatory Research

Social Capital

Community Participation

Population Health

Translational Research, Biomedical

Trust in Community-Engaged Research Partnerships: A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative.

Journal article

Kim, Mimi M|0000-0002-1352-9670|0000-0003-1100-1298|0000-0003-2381-3453

180

192

3

Duke

School of Medicine

Clinical Science Departments

Family Medicine and Community Health

Family Medicine and Community Health, Community Health

Published

43