Lessons learned in the recruitment and retention of Black males in informal dementia caregiving research.

Abstract

IntroductionBlack American men are underrepresented in Alzheimer's disease and Alzheimer's disease related dementias (AD/ADRD) research. This article aims to provide a framework for recruiting Black men in biomedical research, particularly for AD/ADRD caregiver studies.MethodsWe combined multiple recruitment strategies, both virtual, due to the COVID-19 pandemic, and in-person, that focused on a culturally informed community engagement approach. Through partnerships with local organizations, including faith-based groups, we developed recruitment strategies based on their expert recommendations.ResultsOf the n = 180 participants recruited, n = 77 participated in this study, n = 37 caregivers and n = 40 non-caregivers. The mean age of participants was 58.17 years, and the average participant had earned a master's degree.DiscussionThis pilot study encompassed a synergistic strategy approach that combined three methods to recruit, engage, and retain Black men in biomedical research. By recruiting underrepresented groups, we can gain insights into the unique needs these populations may face, leading to the development of more tailored interventions.HighlightsTo address barriers to participation, a culturally informed, community-based, relationship-guided approach guided by the health belief model was utilized. Focused recruitment, engagement, and retention efforts in the Washington, DC, metropolitan area attracted n = 180 Black male adults for an AD/ADRD informal caregiver research project. Through partnerships with local organizations, including faith-based organizations, we curated recruitment strategies based on their expert recommendations. We continuously foster cross-collaboration with participants to educate the public and ensure that vital information is included in the interpretation of results from a layman's perspective.