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Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance.

dc.contributor.author Hazelton, Garrett
dc.contributor.author Al-Khatib, Sana M
dc.contributor.author Fonarow, Gregg C
dc.contributor.author Thomas, Kevin L
dc.contributor.author Hayes, David
dc.contributor.author Sanders, Gillian D
dc.contributor.author Campbell, Susan M
dc.contributor.author Yancy, Clyde
dc.contributor.author Peterson, Eric D
dc.contributor.author Sears, Samuel
dc.coverage.spatial New Zealand
dc.date.accessioned 2017-07-06T16:00:44Z
dc.date.available 2017-07-06T16:00:44Z
dc.date.issued 2013
dc.identifier https://www.ncbi.nlm.nih.gov/pubmed/23641150
dc.identifier ppa-7-361
dc.identifier.issn 1177-889X
dc.identifier.uri https://hdl.handle.net/10161/15020
dc.description.abstract BACKGROUND: Conveying contemporary treatment options for those at risk of sudden cardiac arrest (SCA) is challenging. The purpose of the present research was to evaluate the quality and usability of available patient educational tools relevant to SCA and its treatment options, such as implantable cardioverter defibrillators (ICDs). We hypothesized that this review would identify gaps in areas of information for the enhancement of patient education and decision-making materials. METHODS: We used a formal instrument to assess specific domains of content, development, and effectiveness of 18 available SCA and ICD educational tools. The multidisciplinary review panel included two electrophysiologists, two general cardiologists, a cardiac psychologist, a health services researcher, and a patient advocate. RESULTS: Of the 18 education tools, four were rated as "good, may need revisions, but sufficient for use", 12 were rated as "marginal, needs revision prior to use", and two were rated as "poor, inadequate for use". None of the tools were rated as being of "very good" or "excellent" quality. CONCLUSION: There appear to be opportunities to improve the quality and completeness of existing educational tools for patients with SCA and ICD. While many tools have been developed, they fall below current standards for supporting informed medical decision-making.
dc.language eng
dc.publisher Informa UK Limited
dc.relation.ispartof Patient Prefer Adherence
dc.relation.isversionof 10.2147/PPA.S42637
dc.subject decision-making
dc.subject implantable cardioverter defibrillators
dc.subject patient-centered outcomes research
dc.title Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance.
dc.type Journal article
duke.contributor.id Al-Khatib, Sana M|0111292
duke.contributor.id Thomas, Kevin L|0218075
duke.contributor.id Peterson, Eric D|0130909
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/23641150
pubs.begin-page 361
pubs.end-page 368
pubs.organisational-group Basic Science Departments
pubs.organisational-group Biostatistics & Bioinformatics
pubs.organisational-group Clinical Science Departments
pubs.organisational-group Duke
pubs.organisational-group Duke Clinical Research Institute
pubs.organisational-group Institutes and Centers
pubs.organisational-group Medicine
pubs.organisational-group Medicine, Cardiology
pubs.organisational-group Medicine, Clinical Pharmacology
pubs.organisational-group School of Medicine
pubs.publication-status Published online
pubs.volume 7
duke.contributor.orcid Peterson, Eric D|0000-0002-5415-4721


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