The Challenge of Community Representation.

Lawrence, Carlton

Stewart, Kearsley

United States

2018-03-01T15:22:29Z

2018-03-01T15:22:29Z

2016-10

Although community advisory boards (CABs) are widely used in clinical research, there is limited data regarding their composition and structure, especially in Africa. Our research provides the first qualitative study of the membership practices, selection methods, and qualifications of the six major HIV research centers that comprise the Ugandan National CAB Network (UNCN). Researchers conducted interviews ( n = 45) with CAB members and research liaisons at each of the sites. While selection practices and demographics varied between the sites, all six CABs exclusively followed a broad community membership model. Results suggest successful CABs are context dependent and thus distinct guidelines may be needed based on variables including CAB funding level, representation model, and research focus.

https://www.ncbi.nlm.nih.gov/pubmed/27552841

1556264616665760

1556-2654

https://hdl.handle.net/10161/16128

eng

SAGE Publications

J Empir Res Hum Res Ethics

10.1177/1556264616665760

Africa

CABs

HIV/AIDS

Uganda

broad community versus population-specific membership model

clinical trials

community advisory boards

research ethics

Advisory Committees

Biomedical Research

Community-Based Participatory Research

Community-Institutional Relations

HIV Infections

Humans

Residence Characteristics

Uganda

The Challenge of Community Representation.

Journal article

Stewart, Kearsley|0000-0002-9624-9956

https://www.ncbi.nlm.nih.gov/pubmed/27552841

311

321

4

Duke

Duke Global Health Institute

Duke Science & Society

Initiatives

Institutes and Provost's Academic Units

University Institutes and Centers

Published

11