Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions

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10.2196/jopm.8958

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Katsanis, Sara Huston, Mollie A Minear, Azita Sadeghpour, Heidi Cope, Yezmin Perilla, Robert Cook-Deegan, undefined Duke Task Force For Neonatal Genomics, Nicholas Katsanis, et al. (2018). Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions. Journal of Participatory Medicine, 10(1). pp. e2–e2. 10.2196/jopm.8958 Retrieved from https://hdl.handle.net/10161/17563.

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Angrist

Misha Angrist

Associate Professor of the Practice in the Social Science Research Institute

Misha Angrist is Associate Professor of the Practice at SSRI, a Senior Fellow in Science & Society, and Visiting Associate Professor of the Practice in the Sanford School of Public Policy as part of the DeWitt Wallace Center for Media & Democracy. He directs the undergraduate Science & Society Certificate Program and the First-year FOCUS cluster on Science and the Public. He teaches and mentors students in the MA in Bioethics & Science Policy. He teaches science writing and scholarly writing to both undergraduate and graduate students. In his work, he explores the intersection of biology and society, especially as it relates to the governance of human participation in research and medicine. As the fourth participant in the Personal Genome Project, he was among the first to have his entire genome sequenced and made public. He chronicled this experience in his book, Here is a Human Being: At the Dawn of Personal Genomics. Angrist has an MFA from the Bennington Writing Seminars, an MS in genetic counseling from the University of Cincinnati, and a PhD in genetics from Case Western Reserve University.


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