Validation and Quality Assessment of the Kilimanjaro Cancer Registry.
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PURPOSE: Global cancer burden has increasingly shifted to low- and middle-income countries and is particularly pronounced in Africa. There remains a lack of comprehensive cancer information as a result of limited cancer registry development. In Moshi, Tanzania, a regional cancer registry exists at Kilimanjaro Christian Medical Center. Data quality is unknown. Our objective was to evaluate the completeness and quality of the Kilimanjaro Cancer Registry (KCR). METHODS: In October 2015, we conducted a retrospective review of KCR by validating the internal consistency of registry records with medical and pathology records. We randomly sampled approximately 100 total registry cases. Four reviewers not associated with the KCR manually collected data elements from medical records and compared them with KCR data. RESULTS: All 100 reviewed registry cases had complete cancer site and morphology included in the registry. Six had a recorded stage. For the majority (n = 92), the basis of diagnosis was pathology. Pathology reports were found in the medical record for 40% of patients; for the remainder, these were stored separately in the pathology department. Of sampled registry cases, the KCR and medical records were 98% and 94% concordant for primary cancer site and morphology, respectively. For 28%, recorded diagnosis dates were within 14 days of what was found in the medical record, and for 32%, they were within 30 days. CONCLUSION: The KCR has a high level of concordance for classification and coding when data are retrieved for validation. This parameter is one of the most important for measuring data quality in a regional cancer registry.
Published Version (Please cite this version)10.1200/JGO.2015.002873
Publication InfoBartlett, J; Karia, Francis; Maro, Venance P; Msomba, A; Muiruri, Charles; Munishi, Oresto Michael; ... Zullig, Leah L (2016). Validation and Quality Assessment of the Kilimanjaro Cancer Registry. J Glob Oncol, 2(6). pp. 381-386. 10.1200/JGO.2015.002873. Retrieved from http://hdl.handle.net/10161/15102.
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Medical Instructor in the Department of Population Health Sciences
Dr. Muiruri is a health services researcher, Medical Instructor in the Duke Department of Population Health Sciences, Assistant Research Professor in the Global Health Institute, and Adjunct lecturer at the Kilimanjaro Christian Medical University College, Moshi Tanzania. His research is supported by a diversity supplemental Award from the National Heart, Lung and Blood Institute, focused on improving hypertension and hyperlipidemia medication adherence for persons living with HIV. Dr. Muirur
Assistant Professor of Pediatrics
Associate Professor of Medicine
Dr. Zafar is a health services researcher with a focus in improving care delivery for patients with advanced cancer. He has obtained advanced training in health services research and has participated in single-institution, multi-institution and national studies focusing on access to care, cost of care, and comparative effectiveness of care delivery between health systems. His primary area of interest is in the cost of cancer care. He has conducted institutional and national studies on how t
Associate Professor in Population Health Sciences
Leah L. Zullig, PhD, MPH is a health services researcher, Associate Professor in the Duke Department of Population Health Sciences, investigator at the Durham Veterans Affairs Medical Center, and Adjunct Assistant Professor of Health Policy and Management at the University of North Carolina at Chapel Hill. Her research is supported by a VA HSR&D Career Development Award, focused on improving colorectal cancer survivors’ care quality through a self-management intervention bridging ca
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