Assessing Key Stakeholders' Knowledge, Needs, and Preferences for Head and Neck Cancer Survivorship Care Plans.

dc.contributor.author

Zullig, Leah L

dc.contributor.author

Ramos, Katherine

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Berkowitz, Callie

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Miller, Julie J

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Dolor, Rowena J

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Koontz, Bridget F

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Yousuf Zafar, S

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Hutch Allen, D

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Tenhover, Jennifer A

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Bosworth, Hayden B

dc.date.accessioned

2024-01-25T23:48:34Z

dc.date.available

2024-01-25T23:48:34Z

dc.date.issued

2019-06

dc.description.abstract

Cancer survivorship care plans (SCPs) are endorsed to support quality care for cancer survivors, but uptake is slow. We assessed knowledge, needs, and preferences for SCP content and delivery from a wide variety of stakeholders. We focused SCP content for head and neck cancer as it is a disease prone to long-term side effects requiring management from multiple providers. We conducted telephone-based, qualitative interviews. We purposively sampled head and neck cancer survivors (n = 4), primary care physicians in the community (n = 5), and providers affiliated with a large academic medical center (n = 5) who treat head and neck cancer, cancer specialists (n = 6), and nurse practitioners/supportive care staff (n = 5). Interviews were recorded, transcribed, and analyzed using direct content analysis. Few participants reported personal experience with SCPs, but most supported the concept. Several key themes emerged: (1) perceived ambiguity regarding roles and responsibilities for SCPs, (2) a need to tailor the content and language based on the intended recipient, (3) documentation process should be as automated and streamlined as possible, (4) concerns about using the SCP to coordinate with outside providers, and (5) that SCPs would have added value as a "living document." We also report SCP-related issues that are unique to serving patients diagnosed with head and neck cancer. Effort is needed to tailor SCPs for different recipients and optimize their potential for successful implementation, impact on care outcomes, and sustainability. Many cancer survivors may not receive a SCP as part of routine care. Survivors could engage their health care team by requesting a SCP.

dc.identifier

10.1007/s13187-018-1345-5

dc.identifier.issn

0885-8195

dc.identifier.issn

1543-0154

dc.identifier.uri

https://hdl.handle.net/10161/29860

dc.language

eng

dc.publisher

Springer Science and Business Media LLC

dc.relation.ispartof

Journal of cancer education : the official journal of the American Association for Cancer Education

dc.relation.isversionof

10.1007/s13187-018-1345-5

dc.rights.uri

https://creativecommons.org/licenses/by-nc/4.0

dc.subject

Humans

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Head and Neck Neoplasms

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Attitude of Health Personnel

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Communication

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Professional Role

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Documentation

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Middle Aged

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Nurse Practitioners

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Patient Care Planning

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Female

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Male

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Interviews as Topic

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Physicians, Primary Care

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Cancer Survivors

dc.title

Assessing Key Stakeholders' Knowledge, Needs, and Preferences for Head and Neck Cancer Survivorship Care Plans.

dc.type

Journal article

duke.contributor.orcid

Zullig, Leah L|0000-0002-6638-409X

duke.contributor.orcid

Ramos, Katherine|0000-0002-7584-3040

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Dolor, Rowena J|0000-0001-7317-9468

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Koontz, Bridget F|0000-0003-4782-208X

duke.contributor.orcid

Bosworth, Hayden B|0000-0001-6188-9825

pubs.begin-page

584

pubs.end-page

591

pubs.issue

3

pubs.organisational-group

Duke

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School of Medicine

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Faculty

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Basic Science Departments

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Clinical Science Departments

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Institutes and Centers

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Medicine

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Psychiatry & Behavioral Sciences

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Medicine, General Internal Medicine

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Medicine, Geriatrics

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Medicine, Medical Oncology

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Duke Cancer Institute

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Duke Clinical Research Institute

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Institutes and Provost's Academic Units

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University Institutes and Centers

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Duke Global Health Institute

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Center for the Study of Aging and Human Development

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Initiatives

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Duke Science & Society

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Population Health Sciences

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Duke Innovation & Entrepreneurship

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Head and Neck Surgery & Communication Sciences

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Psychiatry & Behavioral Sciences, Behavioral Medicine & Neurosciences

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Psychiatry & Behavioral Sciences, Adult Psychiatry & Psychology

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Duke - Margolis Center For Health Policy

pubs.publication-status

Published

pubs.volume

34

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