Assessing Key Stakeholders' Knowledge, Needs, and Preferences for Head and Neck Cancer Survivorship Care Plans.

Zullig, Leah L

Ramos, Katherine

Berkowitz, Callie

Miller, Julie J

Dolor, Rowena J

Koontz, Bridget F

Yousuf Zafar, S

Hutch Allen, D

Tenhover, Jennifer A

Bosworth, Hayden B

2024-01-25T23:48:34Z

2024-01-25T23:48:34Z

2019-06

Cancer survivorship care plans (SCPs) are endorsed to support quality care for cancer survivors, but uptake is slow. We assessed knowledge, needs, and preferences for SCP content and delivery from a wide variety of stakeholders. We focused SCP content for head and neck cancer as it is a disease prone to long-term side effects requiring management from multiple providers. We conducted telephone-based, qualitative interviews. We purposively sampled head and neck cancer survivors (n = 4), primary care physicians in the community (n = 5), and providers affiliated with a large academic medical center (n = 5) who treat head and neck cancer, cancer specialists (n = 6), and nurse practitioners/supportive care staff (n = 5). Interviews were recorded, transcribed, and analyzed using direct content analysis. Few participants reported personal experience with SCPs, but most supported the concept. Several key themes emerged: (1) perceived ambiguity regarding roles and responsibilities for SCPs, (2) a need to tailor the content and language based on the intended recipient, (3) documentation process should be as automated and streamlined as possible, (4) concerns about using the SCP to coordinate with outside providers, and (5) that SCPs would have added value as a "living document." We also report SCP-related issues that are unique to serving patients diagnosed with head and neck cancer. Effort is needed to tailor SCPs for different recipients and optimize their potential for successful implementation, impact on care outcomes, and sustainability. Many cancer survivors may not receive a SCP as part of routine care. Survivors could engage their health care team by requesting a SCP.

10.1007/s13187-018-1345-5

0885-8195

1543-0154

https://hdl.handle.net/10161/29860

eng

Springer Science and Business Media LLC

Journal of cancer education : the official journal of the American Association for Cancer Education

10.1007/s13187-018-1345-5

https://creativecommons.org/licenses/by-nc/4.0

Humans

Head and Neck Neoplasms

Attitude of Health Personnel

Communication

Professional Role

Documentation

Middle Aged

Nurse Practitioners

Patient Care Planning

Female

Male

Interviews as Topic

Physicians, Primary Care

Cancer Survivors

Assessing Key Stakeholders' Knowledge, Needs, and Preferences for Head and Neck Cancer Survivorship Care Plans.

Journal article

Zullig, Leah L|0000-0002-6638-409X

Ramos, Katherine|0000-0002-7584-3040

Dolor, Rowena J|0000-0001-7317-9468

Koontz, Bridget F|0000-0003-4782-208X

Bosworth, Hayden B|0000-0001-6188-9825

584

591

3

Duke

School of Medicine

Faculty

Basic Science Departments

Clinical Science Departments

Institutes and Centers

Medicine

Psychiatry & Behavioral Sciences

Medicine, General Internal Medicine

Medicine, Geriatrics

Medicine, Medical Oncology

Duke Cancer Institute

Duke Clinical Research Institute

Institutes and Provost's Academic Units

University Institutes and Centers

Duke Global Health Institute

Center for the Study of Aging and Human Development

Initiatives

Duke Science & Society

Population Health Sciences

Duke Innovation & Entrepreneurship

Head and Neck Surgery & Communication Sciences

Psychiatry & Behavioral Sciences, Behavioral Medicine & Neurosciences

Psychiatry & Behavioral Sciences, Adult Psychiatry & Psychology

Duke - Margolis Center For Health Policy

Published

34