A case study of inclusion of rural populations in research: Implications for science and health equity.
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2024-08
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Prior research highlights that rural populations have been historically underrepresented/excluded from clinical research. The primary objective of this study was to describe the inclusion of rural populations within our research enterprise using Clinical Research Management System demographic information at a large academic medical center in the Southeast. This was a cross-sectional study using participant demographic information for all protocols entered into our Clinical Research Management System between May 2018 and March 2021. Descriptive statistics were used to analyze the representation of rural and non-rural participants and demographic breakdown by age, sex, race, and ethnicity for our entire enterprise and at the state level. We also compared Material Community Deprivation Index levels between urban and rural participants. Results indicated that 19% of the research population was classified as rural and 81% as non-rural for our entire sample, and 17.5% rural and 82.5% urban for our state-level sample. There were significant differences in race, sex, and age between rural and non-rural participants and Material Community Deprivation Indices between rural and non-rural participants. Lessons learned and recommendations for increasing the inclusion of rural populations in research are discussed.
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Noonan, Devon, Wendy KK Lam, James Goodrich, Sydney Sullivan, Keisha Bentley-Edwards, Dwight Koeberl, Anushka Palipana, F Joseph McClernon, et al. (2024). A case study of inclusion of rural populations in research: Implications for science and health equity. Clinical and translational science, 17(8). p. e13885. 10.1111/cts.13885 Retrieved from https://hdl.handle.net/10161/31412.
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Devon Noonan
Dr. Noonan is a nurse scientist, certified addictions nurse and an Associate Professor in the Duke School of Nursing. She received her BSN at Boston College, her MS in Nursing at Georgetown University, her MPH and PhD at the University of Virginia and completed a Post-Doctoral Fellowship at the University of Michigan. Dr. Noonan’s research is focused on using community-engaged approaches to develop innovative health behavior change interventions, including digital interventions, with the goal of reducing risk for chronic diseases including cancer and cardiovascular disease. Dr. Noonan’s work has a strong focus on rural and medically underserved populations. Much of her work also focuses on tobacco cessation. She has been continuously funded by NCI for the past 5 years to examine text-based intervention approaches for tobacco cessation in rural and medically underserved populations. Dr. Noonan teaches and mentors students across all programs at DUSON and is the Co-Director of the Duke National Clinician Scholars Program.
K.K. Lam
Program Director, CTSA Special Populations Core
Program Director, Newborn Screening Evidence Review Group
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