How Is the Caregiver Doing? Capturing Caregivers' Experiences With a Reflective Toolkit.
| dc.contributor.author | Bosch, L | |
| dc.contributor.author | Kanis, M | |
| dc.contributor.author | Dunn, J | |
| dc.contributor.author | Stewart, Kearsley | |
| dc.contributor.author | Krose, B | |
| dc.date.accessioned | 2021-01-11T19:40:23Z | |
| dc.date.available | 2021-01-11T19:40:23Z | |
| dc.date.issued | 2019-05-28 | |
| dc.date.updated | 2021-01-11T19:40:08Z | |
| dc.description.abstract | BACKGROUND:This paper describes the Co-Care-KIT, a reflective toolkit designed to provide insights into the diverse experiences of home-based informal caregivers during the delivery of care to a relative or loved one. OBJECTIVE:The aim of this study was to evaluate the toolkit, including a custom-designed journal, tools for photography-based experience sampling, and heart rate tracking, which enables caregivers to collect and reflect on their positive and negative daily experiences in situ. METHODS:A 2-week field study with informal caregivers (N=7) was conducted to evaluate the Co-Care-KIT and to capture their daily personal emotional experiences. The collected data samples were analyzed and used for collaborative dialogue between the researcher and caregiver. RESULTS:The results suggest that the toolkit (1) increased caregivers' awareness of their own well-being through in situ reflection on their experiences; (2) empowered caregivers to share their identities and experiences as a caregiver within their social networks; (3) enabled the capturing of particularly positive experiences; and (4) provided caregivers reassurance with regards to their own mental health. CONCLUSION:By enabling capturing and collaborative reflection, the kit helped to gain a new understanding of caregivers' day-to-day needs and emotional experiences. | |
| dc.identifier | v6i5e13688 | |
| dc.identifier.issn | 2368-7959 | |
| dc.identifier.issn | 2368-7959 | |
| dc.identifier.uri | ||
| dc.language | eng | |
| dc.publisher | JMIR Publications Inc. | |
| dc.relation.ispartof | JMIR mental health | |
| dc.relation.isversionof | 10.2196/13688 | |
| dc.subject | HCI (human computer interaction) | |
| dc.subject | experience sampling | |
| dc.subject | home care | |
| dc.subject | human-centered design | |
| dc.subject | informal caregivers | |
| dc.subject | mental health | |
| dc.subject | positive psychology | |
| dc.subject | reflective technologies | |
| dc.subject | well-being | |
| dc.title | How Is the Caregiver Doing? Capturing Caregivers' Experiences With a Reflective Toolkit. | |
| dc.type | Journal article | |
| duke.contributor.orcid | Stewart, Kearsley|0000-0002-9624-9956 | |
| pubs.begin-page | e13688 | |
| pubs.issue | 5 | |
| pubs.organisational-group | Institutes and Provost's Academic Units | |
| pubs.organisational-group | Duke Science & Society | |
| pubs.organisational-group | Duke Global Health Institute | |
| pubs.organisational-group | Duke | |
| pubs.organisational-group | Initiatives | |
| pubs.organisational-group | University Institutes and Centers | |
| pubs.publication-status | Published | |
| pubs.volume | 6 |
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