Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD).

dc.contributor.author

Nooner, Kate B

dc.contributor.author

Chung, Tammy

dc.contributor.author

Feldstein Ewing, Sarah W

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Brumback, Ty

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Arwood, Zjanya

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Tapert, Susan F

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Brown, Sandra A

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Cottler, Linda

dc.date.accessioned

2021-06-24T22:33:26Z

dc.date.available

2021-06-24T22:33:26Z

dc.date.issued

2020-01

dc.date.updated

2021-06-24T22:33:25Z

dc.description.abstract

The novel coronavirus pandemic that emerged in late 2019 (COVID-19) has created challenges not previously experienced in human research. This paper discusses two large-scale NIH-funded multi-site longitudinal studies of adolescents and young adults - the National Consortium on Alcohol and Neurodevelopment in Adolescence (NCANDA) and the Adolescent Brain Cognitive Development (ABCD) Study - and valuable approaches to learn about adaptive processes for conducting developmentally sensitive research with neuroimaging and neurocognitive testing across consortia during a global pandemic. We focus on challenges experienced during the pandemic and modifications that may guide other projects, such as implementing adapted protocols that protect the safety of participants and research staff, and addressing assessment challenges through the use of strategies such as remote and mobile assessments. Given the pandemic's disproportionate impacts on participants typically underrepresented in research, we describe efforts to retain these individuals. The pandemic provides an opportunity to develop adaptive processes that can facilitate future studies' ability to mobilize effectively and rapidly.

dc.identifier.issn

1662-5153

dc.identifier.issn

1662-5153

dc.identifier.uri

https://hdl.handle.net/10161/23393

dc.language

eng

dc.publisher

Frontiers Media SA

dc.relation.ispartof

Frontiers in behavioral neuroscience

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10.3389/fnbeh.2020.597902

dc.subject

adolescent

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developmental

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longitudinal

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neuroimaging

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pandemic

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retention

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young adult

dc.title

Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD).

dc.type

Journal article

duke.contributor.orcid

Nooner, Kate B|0000-0003-3756-649X

pubs.begin-page

597902

pubs.organisational-group

School of Medicine

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Duke

pubs.publication-status

Published

pubs.volume

14

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