Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD).
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2020-01
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The novel coronavirus pandemic that emerged in late 2019 (COVID-19) has created challenges not previously experienced in human research. This paper discusses two large-scale NIH-funded multi-site longitudinal studies of adolescents and young adults - the National Consortium on Alcohol and Neurodevelopment in Adolescence (NCANDA) and the Adolescent Brain Cognitive Development (ABCD) Study - and valuable approaches to learn about adaptive processes for conducting developmentally sensitive research with neuroimaging and neurocognitive testing across consortia during a global pandemic. We focus on challenges experienced during the pandemic and modifications that may guide other projects, such as implementing adapted protocols that protect the safety of participants and research staff, and addressing assessment challenges through the use of strategies such as remote and mobile assessments. Given the pandemic's disproportionate impacts on participants typically underrepresented in research, we describe efforts to retain these individuals. The pandemic provides an opportunity to develop adaptive processes that can facilitate future studies' ability to mobilize effectively and rapidly.
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Nooner, Kate B, Tammy Chung, Sarah W Feldstein Ewing, Ty Brumback, Zjanya Arwood, Susan F Tapert, Sandra A Brown, Linda Cottler, et al. (2020). Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD). Frontiers in behavioral neuroscience, 14. p. 597902. 10.3389/fnbeh.2020.597902 Retrieved from https://hdl.handle.net/10161/23393.
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Kate B Nooner
Dr. Kate Brody Nooner, PhD, ABPP, has NIH-funded research and collaborates with Dr. David Goldston at Duke Psychiatry as part of the National Consortium on Alcohol & Neurodevelopment in Adolescence. She is also a tenured full Professor, Senior Associate Dean for the College of Science and Engineering, and former Department Chair of the Department of Psychology at the University of North Carolina Wilmington.
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