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Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance.

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Date
2013
Authors
Hazelton, Garrett
Al-Khatib, Sana M
Fonarow, Gregg C
Thomas, Kevin L
Hayes, David
Sanders, Gillian D
Campbell, Susan M
Yancy, Clyde
Peterson, Eric D
Sears, Samuel
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Abstract
BACKGROUND: Conveying contemporary treatment options for those at risk of sudden cardiac arrest (SCA) is challenging. The purpose of the present research was to evaluate the quality and usability of available patient educational tools relevant to SCA and its treatment options, such as implantable cardioverter defibrillators (ICDs). We hypothesized that this review would identify gaps in areas of information for the enhancement of patient education and decision-making materials. METHODS: We used a formal instrument to assess specific domains of content, development, and effectiveness of 18 available SCA and ICD educational tools. The multidisciplinary review panel included two electrophysiologists, two general cardiologists, a cardiac psychologist, a health services researcher, and a patient advocate. RESULTS: Of the 18 education tools, four were rated as "good, may need revisions, but sufficient for use", 12 were rated as "marginal, needs revision prior to use", and two were rated as "poor, inadequate for use". None of the tools were rated as being of "very good" or "excellent" quality. CONCLUSION: There appear to be opportunities to improve the quality and completeness of existing educational tools for patients with SCA and ICD. While many tools have been developed, they fall below current standards for supporting informed medical decision-making.
Type
Journal article
Subject
decision-making
implantable cardioverter defibrillators
patient-centered outcomes research
Permalink
https://hdl.handle.net/10161/15020
Published Version (Please cite this version)
10.2147/PPA.S42637
Publication Info
Hazelton, Garrett; Al-Khatib, Sana M; Fonarow, Gregg C; Thomas, Kevin L; Hayes, David; Sanders, Gillian D; ... Sears, Samuel (2013). Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance. Patient Prefer Adherence, 7. pp. 361-368. 10.2147/PPA.S42637. Retrieved from https://hdl.handle.net/10161/15020.
This is constructed from limited available data and may be imprecise. To cite this article, please review & use the official citation provided by the journal.
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Scholars@Duke

Al-Khatib

Sana Mustapha Al-Khatib

Professor of Medicine
Dr. Sana M. Al-Khatib is a tenured Professor of Medicine at Duke University Medical Center, a board-certified clinical electrophysiologist and an experienced clinical researcher in cardiac arrhythmias.  As a graduate of the NIH-funded Clinical Research Training Program, she is one of a few electrophysiologists nationwide with expertise in quantitative research methods. Her clinical expertise is in sudden cardiac death prevention, atrial fibrillation and ventricular arrhy
Peterson

Eric David Peterson

Fred Cobb, M.D. Distinguished Professor of Medicine
Dr Peterson is the Fred Cobb Distinguished Professor of Medicine in the Division of Cardiology, a DukeMed Scholar, and the Past Executive Director of the Duke Clinical Research Institute (DCRI), Durham, NC, USA. Dr Peterson is the Principal Investigator of the National Institute of Health, Lung and Blood Institute (NHLBI) Spironolactone Initiation Registry Randomized Interventional Trial in Heart Failure With Preserved Ejection Fraction (SPIRRIT) Trial  He is also the Principal I
This author no longer has a Scholars@Duke profile, so the information shown here reflects their Duke status at the time this item was deposited.
Thomas

Kevin Lindsey Thomas

Associate Professor of Medicine
Alphabetical list of authors with Scholars@Duke profiles.
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