Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance.
Abstract
BACKGROUND: Conveying contemporary treatment options for those at risk of sudden cardiac
arrest (SCA) is challenging. The purpose of the present research was to evaluate the
quality and usability of available patient educational tools relevant to SCA and its
treatment options, such as implantable cardioverter defibrillators (ICDs). We hypothesized
that this review would identify gaps in areas of information for the enhancement of
patient education and decision-making materials. METHODS: We used a formal instrument
to assess specific domains of content, development, and effectiveness of 18 available
SCA and ICD educational tools. The multidisciplinary review panel included two electrophysiologists,
two general cardiologists, a cardiac psychologist, a health services researcher, and
a patient advocate. RESULTS: Of the 18 education tools, four were rated as "good,
may need revisions, but sufficient for use", 12 were rated as "marginal, needs revision
prior to use", and two were rated as "poor, inadequate for use". None of the tools
were rated as being of "very good" or "excellent" quality. CONCLUSION: There appear
to be opportunities to improve the quality and completeness of existing educational
tools for patients with SCA and ICD. While many tools have been developed, they fall
below current standards for supporting informed medical decision-making.
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Journal articlePermalink
https://hdl.handle.net/10161/15020Published Version (Please cite this version)
10.2147/PPA.S42637Publication Info
Hazelton, Garrett; Al-Khatib, Sana M; Fonarow, Gregg C; Thomas, Kevin L; Hayes, David;
Sanders, Gillian D; ... Sears, Samuel (2013). Assessment of the quality of existing patient educational tools focused on sudden
cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership
Alliance. Patient Prefer Adherence, 7. pp. 361-368. 10.2147/PPA.S42637. Retrieved from https://hdl.handle.net/10161/15020.This is constructed from limited available data and may be imprecise. To cite this
article, please review & use the official citation provided by the journal.
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Show full item recordScholars@Duke
Sana Mustapha Al-Khatib
Professor of Medicine
Dr. Sana M. Al-Khatib is a tenured Professor of Medicine at Duke University Medical
Center, a board-certified clinical electrophysiologist and an experienced clinical
researcher in cardiac arrhythmias. As a graduate of the NIH-funded Clinical Research
Training Program, she is one of a few electrophysiologists nationwide with expertise
in quantitative research methods. Her clinical expertise is in sudden cardiac death
prevention, atrial fibrillation and ventricular arrhy
Eric David Peterson
Fred Cobb, M.D. Distinguished Professor of Medicine
Dr Peterson is the Fred Cobb Distinguished Professor of Medicine in the Division of
Cardiology, a DukeMed Scholar, and the Past Executive Director of the Duke Clinical
Research Institute (DCRI), Durham, NC, USA.
Dr Peterson is the Principal Investigator of the National Institute of Health, Lung
and Blood Institute (NHLBI) Spironolactone Initiation Registry Randomized Interventional
Trial in Heart Failure With Preserved Ejection Fraction (SPIRRIT) Trial He is also
the Principal I
This author no longer has a Scholars@Duke profile, so the information shown here reflects
their Duke status at the time this item was deposited.
Kevin Lindsey Thomas
Associate Professor of Medicine
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